Archive for July, 2015

Beauty is skin deep

Posted: July 3, 2015 in Uncategorized

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Commercial beauty is rarely the full picture. We are constantly exposed to images, mainly through advertising and fashion, that set the parameters of perfection.
We probably know they are false, unattainable, yet the daily drip of re-touched, paradise backdropped ‘beauty’ inevitably confusess our senses of rational determination.
But that corruption is being re-calibrated by a fascinating and challenging project that puts people with skin conditions in front of the camera. And it is not just any camera, it is one wielded by celebrated photographer Rick Guidotti, who has worked with towering beauties such as Cindy Crawford and the top fashion houses in Milan, Paris, New York and London.
I met him last week on the campus of pharmaceutical giants Novartis, in Basel, and traditional glamour was the last thing on his mind.
“I was always told who was the model of the day. I was told who was beautiful and I bought it,” he said. “But it was ultimately frustrating. I am an artist and I don’t want to be told what is beautiful.”
A change meeting with a teenager with albinism on the streets of New York changed his focal length outlook on life and work and he started championing diversity through his photographs.
Out went the supermodels, catwalk drones and prescriptive booking agencies and Positive Exposure was born. http://positiveexposure.org/
It is his mission to re-define beauty, strip away the camouflaging gloss and shows us a stigma-challenging reality.
Who photographs people with chronic skin conditions such as psoriasis and chronic spontaneous urticaria? Rick does. And he is passionate.
He is working on a project, supported by Novartis’s Skin to live in campaign http://www.skintolivein.com, that shows these real models for the real people they are. No studio, just natural light and people freed to live in their skin.images
17 people from 11 countries stepped out of the shadows to be photographed by Rick for the campaign. One of them happens to be a ballet dancer from New York, who was struck by psoriasis when she was three-years-old; another is a mum from Brazil. His gallery shows the person beyond the condition and it is refreshing.
He photographed them as beauties; in the past they shunned the camera and were only used as examples in medical textbooks. His work covers all forms of genetic diversity and, with his expert touch, the character not the condition shines through.
Rick’s passion is like a waterfall, check him out on an inspiring TEDX talk https://www.youtube.com/watch?v=yIKM7_rgUXU
We have an easy facility to look away when we see something different and as we are continually bombarded by images of what is and isn’t acceptable the field of ‘normal’ vision narrows….we become less accepting. We also have less time to stop and consider.
I’ve interviewed many people with skin conditions and, although the physical pain and discomfort sound corrossive, the damage to their confidence and self-esteem is evident. They talk about being prisoners in their own skin….stop just a minute to consider that.

Having to itch, scratch and squirm is one (enormous) thing but to have your personality and opportunities compromised is another (equally enormous) thing.
Medical advances have provided relief for sufferers and the work decoding the IL-17A pathway that is a route to debilitating skin conditions is truly game-changing for millions worldwide. But it will take us a bit longer to look and see through eratz beauty.
Rick sums it up perfectly…
Change how you see
See how you change

medtronic-micra-pacemaker

 

 

 

Health innovation is leaving the NHS standing. New devices, wearables, diagnostic pills you can swallow, Star Trek gadgets – the science is fact but the health service’s ability to take advantage is largely fiction.
The waterfall of tech somehow evaporates before it gets to the patient and failure to use these advantages will be little short of criminal negligence.
I wrote the following piece which was published in last week’s Sunday Times (http://raconteur.net) and in the intervening time I’ve heard even more about the healthcare capabilities of technology and nothing about how we plan to use them for the masses.
Obviously, a policy announcement is not as sexy as revealing a power-packed device the size of a matchstick but I worry that government is not switched on. If they don’t fully embrace tech then the NHS is heading for a pathetic future and we will lose the potential health gains for the masses.

(Photo: world’s smallest heart pacemaker from Medtronic)

Here’s the article…..

Funereal gloom engulfs modern healthcare with most announcements about its future preceded by four jet-black stallions and trailed by a procession of solemn mourners.
So bad are the NHS’s vital life signs – a £34 billion funding shortage and chronic illness time bombs – that it feels just a matter of time before a sorrowing nation bids farewell to a dear institutional friend.
But there is light. If the ages of medicine have been characterised by such wonders as anaesthetic, antibiotics, robotic operating techniques and biologics, a new era of therapies is upon us and it is one that could breathe fresh life into the creaking body of healthcare. The Internet of Things may not have an august medical profile but it can be the power behind a health revolution.
The wearable technology of the fitness craze is about to mature into a procession of devices that can monitor a body’s vital rhythms and predict illness. Small patches on the skin and even ingested capsules will stream real time data to clinicians who can keep patients out of hospitals and GP waiting rooms.
Getting connected could save us a fortune and postpone the psalms and eulogies for the NHS.
The opportunity for change – and profit, with Cisco predicting the IoT could generate £48 billion of business over the next decade – is attracting some of the most creative minds in technology along with the big players such as IBM and Apple.
Their combined brain and corporate firepower could liberate the NHS’s choke points such as clogged waiting rooms and the sclerotic pathways of care full of delayed and disjointed appointments.
Crucially, it also has the potential to encourage the public to take ownership of their health and make the lifestyle changes that could stem the engulfing tides of diabetes and heart conditions.
The gadgets are ready, the IoT is ready. The number of smart phones in the UK will reach 43.4 million in 2017.
James Norman, former IT director at the Royal Liverpool and Broadgreen University Hospitals NHS Foundation Trust, believes that new data streams from devices linked to the internet will de-mystify health for the public and provide them with knowledge to live better lives.
“It is about keeping them out of hospital by keeping them informed. If a patient is involved in their care, evidence shows they have a better chance of a more successful and quicker outcome and their demand on services is reduced,” he said.

Analytics

Norman, now UK public sector chief information officer for global technology leadership specialists EMC, added: “We need different models of care with patients being treated at home, and greater use of technology around big data and predictive analystics to find the best care for patients.
“The NHS can change and change quite quickly but it is all about investing in the right skills. If you don’t invest in promoting the skills to analyse the data you might as well put it in a black hole – it is a waste of money.”
The use of tele-health systems – email and video link to diagnose and guide patients – is growing but the pace of change needs to accelerated so that the one million patients seen by NHS every 36 hours have easy access to monitors and devices to have a dynamic impact on mortality as well as systemic choke points.
“In five years time, hypertension will not be the silent killer it is now because we will know everyone who is hypertensive and we are at the $50 price per person for the device to monitor this so it will have a major impact,” said Thibault Sevestre, a digital innovation lead for Philips, which is developing devices and systems for heart conditions, diabetes and COPD.

Empower

“With the IoT and the right technology we are going to be able to offer diagnosis, risk profiling and the right support to take action for the masses very quickly. It means you intervene with 10 per cent of patients who need attention rather than those who are coming in for their scheduled visits yet are actually doing pretty well.”
Pilot Philips projects have returned a 30% reduction in both re-admissions to hospitals and to operating costs. Extrapolate that across the NHS landscape and the savings could hit £40 billion.
IoT devices are also predicted to punch a huge hole in the annual £300 million bill for unused medicine by prompting patients to adhere to regimes.
Dr Shahid Ali, a Bradford GP and Professor of Digital Health at the University of Salford, (http://www.salford.ac.uk/chsc) has already proved the benefit of connectivity at his NHS practice where 98 per cent of patients on a tech-supported programme reduced their blood pressure within three months.
“When you empower individuals rather than dictating to them, you begin to see that real change. We need to personalise services and be more proactive and introduce immediacy and they will respond,” he said.
“Getting the best from it requires cultural change. We are not at the tipping point yet but it has to come relatively soon, within the next five years.”
Michael Thomas, a healthcare analyst at A. T. Kearney, added: “There is a real opportunity for a healthcare revolution. It is the chance to engage with patients to tailor treatments and to make them take more responsible for their health.
“Healthcare is so much cheaper if delivered digitally and it is the best shot we have.”
Security of data is still a big concern along with the connectivity of NHS hospitals – one survey suggested only23 per had access to wi-fi.
At the sharp end, Tunstall Healthcare (http://www.tunstall.co.uk/what-we-do/telehealth) is delivering pioneering technology-based services to more than three million people around the world, employing smart hubs and sensors to help people live independent lives.
A project in Barcelona deploys a smart hub in homes to act as an emergency alarm, to detect activity levels and as a medication reminder, wirelessly relaying the data. It has generated a 20 per cent drop in call outs and residents enjoy an average one-year extra at home.
Steve Sadler, the Yorkshire-based company’s chief technical officer, believes that the IoT efficacy will be governed by the quality of the data collected as well as the sophistication of new devices and monitors.
“When it is there, the IoT helps us enrich that data so we can build better services,” he added. “The big challenge is for the technology not to work in isolation. It needs context and linking but get it right and we can replace the fragmented silos of healthcare and the future is very exciting.”